Recently my little Camrey had open heart surgery in Tulsa, Ok. She was diagnosed with Williams Syndrome at the young age of 1. Williams Syndrome has a lot of the same traits as down syndrome but in a different chromosome. She had her heart surgery on Oct 6. She was released from the hospital just 4 days after the surgery. She was doing great, told us " my heart is happy and strong now." She passed away of heart failure after a seizure just 6 days after her heart surgery. I am so happy and blessed that I got to meet her and have such a tight nit family. I am so happy I was able to be there before her surgery and see her the time that I did. I was also there when she left this world to be a precious place. I love her and I love my family. As a parent I could never imagine what my Uncle is going through. Just keep us all in your prayers.
